Useful Links

Network of Care

DMH-MRDD Individualized Supported Living Manual

To submit a resource site to be included in this listing, complete the on-line e-mail form with your submission and its internet address. Please keep link and resource submissions relevant to the Developmental Disability fields, and use the word LINK in the subject line of the message. Select a category below to view the selections and read a brief description of each site.


Assistive Technology

Let’s Cook! Cookbook was written by and for adults with intellectual and developmental disabilities


www.FreedomMachines.com

Freedom Machines is a remarkable film that will change forever the way you look at disability. It shows the transformative power of technology when placed in the hands of people with disabilities and challenges your ideas about what is achievable today.


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Information on fire safety for persons who use wheel chairs

AbleLink Technologies

AbleLink Technologies was founded in 1997 specifically to address the significant need for well-researched cognitive support technologies for individuals with intellectual disabilities.

ABLEDATA

ABLEDATA provides objective information about assistive technology products and rehabilitation equipment available from domestic and international sources.

Assis-TECH, Inc.

Has been the leading information technology proposal support company in the Washington, D.C. area since 1989. Provides nationwide support for federal, state and local, and commercial proposals.

Closing the Gap:Microcomputer Technology for People with Special Needs

Assistive technology resources for children and adults with special needs and explains how technology is being implemented in education, rehabilitation, and vocational settings around the world.

Missouri Assistive Technology Project
Provides opportunity to increase access to assistive technology for Missourians with all types of disabilities, of all ages.


Ergoguys

Retailer of assistive technology equipment and supplies who passes on low overhead costs to the consumer. Always researching new and exciting products to offer customers.

Break Boundaries – REACH
(Remote Electronic Access & Control Hands-free)

A division of Home Technologies Corporation whose goal is to help people with mobility impairments increase their independence, and improve their quality of life, with the help of cutting edge Assistive Technology.
Freeware Home
Downloadable programs that could be helpful for individuals with various forms of disabilities.

College Info for Students w/ Disabilities

http://www.collegescholarships.org/blog/2012/10/09/information-for-students-with-disabilities/

AccreditedOnlineColleges.org

A powerful and informative site that provides resources such as Disability Education in support of independent living as well as providing a database of for those who are looking for an accredited online degree program that meets Section 504 of the Rehabilitation Act (section 504).

Affordable Colleges

http://www.affordablecollegesonline.org/spotlight/affordable-colleges-for-students-with-disabilities/

Online Colleges Database is a website and organization focused on providing post-secondary information for students and learners across the world. Our organization recently published a new resource that supports the families and students with disabilities.

hhttp://www.onlinecollegesdatabase.org/online-college-learning-for-students-with-disabilities/


Employment

http://www.eeoc.gov/facts/performance-conduct.html
Applying Performance and Conduct Standards to Employees with Disabilities


>>More Information
“The Social Security Administration has released the 2006 edition of what many people simply call the “Red Book,” which is a summary guide to employment support for individuals with disabilities under the Social Security Disability Insurance (SSDI) and Supplementary Security Income (SSI) programs. “

“Workplace Technologies for People with Disabilities”

This new employment-focused guide provides information on how employers and service providers can utilize assistive technology to make workplaces and service centers accessible to people with disabilities.

Job Accommodations Network

A free consulting service designed to increase the employability of people with disabilities by providing individualized worksite accommodations solutions, technical assistance regarding the ADA and other disability related legislation, and educating callers about self-employment options.

Missouri Works!
The official Workforce Resource website for the State of Missouri for both job seekers and businesses seeking to fill positions.

APSE-MO – The Network on Employment

A national organization committed to improving and expanding integrated employment opportunities, services, and outcomes for people with disabilities.

Disability Benefits 101

Disability Benefits 101 (DB101) helps workers, job seekers, students and service providers understand the connections between work and benefits. In addition to the Benefits-to-Work Calculator and the Job-to-Job Calculator, a new calculator called School and Work is now available for youth with disabilities.

A Toolkit of Resources
For independent living specialists vocational rehabilitation counselors, teachers and educators who assist young adults with disabilities in transition planning.


General Medical

New Ticket to Work Health Assurance Program enables
Missourians with disabilities who have earned income to
qualify for Medicaid.
>> More Information

Flu.gov
Pandemic planning requires that people and entities not accustomed to responding to health crises understand the actions and priorities required to prepare for and respond to these potential risks. Information is provided on these pages to help every sector of society, from federal, state and local government to individuals and families, participate in our national planning efforts.

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Monitored Automatic Medication Dispenser MD.2 with Voice Alarm from e-pill Medication Reminders (Philips Medication Dispenser)

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Find a Federally Qualified Heath Care Center in Missouri.

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Mo Health Net Provider Manuals
Your complete source for all MO HealthNet related services and support for the State of MO Find everything you need – all from one convenient portal.

Medicare Booklet

The attached booklet outlines Mental Health Benefits covered by MediCARE

US Department of Health and Human Services

Provides information regarding HHS as the federal government’s principal agency for protecting the health of all Americans. They provide essential human services, especially for those who are least able to help themselves, with more than 300 programs, covering a wide spectrum of activities.

Equip your Neighbor Partnership

Collects used DME and then distributes free, used durable medical equipment to anyone in the St. Louis and surrounding areas who are in need of items.

Legal/Government/Non-Profit

Midwest Special Needs Trust

Created in 1989 by state statute, Midwest Special Needs Trust is a non-profit organization established for the purpose of administering special needs trusts. If properly structured and administered, special needs trusts do not affect an individual’s eligibility for benefits such as SSI or Medicaid.

Charitable Mission of the Midwest Special Needs Trust

September 25, 2013 – MACDDS Meeting

Americans With Disabilities Act Information & Technical Assistance

this site can direct an individual to ADA standards regarding: employment; public transportation; telephone relay service; proposed design guidelines; education; health care; labor and housing.

Department of Elementary & Secondary Education

This site is an “all in one” webpage for Missouri school issues. Topics include: Curriculum, finance, certification, special education, laws, career opportunities and vocation rehabilitation

Missouri Department of Economic Development

This Department is the lead agency for economic, community, workforce and tourism development in Missouri.

Department of Mental Health

The three Divisions under this Department are Alcohol and Drug Abuse, Comprehensive Psychiatric Services and Developmental Disabilities. From this site an individuals can also access Network of Care.

DMH MR/DD Regional Office

From this webpage, an individual can find regional office locations along with habilitation centers across Missouri. This site will also contain the most recent Division Directives along with “current issues”.

Governor’s Council on Disability
Promotes full participation and inclusion of the nearly 1 million Missourians with disabilities in all aspects of community life by educating citizens, businesses, schools, universities and others of their rights and responsibilities under the Americans with Disabilities Act.

Individuals with Disabilities Education Act

a website to assist individuals find federal legislation and regulations regarding public education related to students with disabilities.

Missouri State Senate

Provides information regarding Senators, bill tracking, calendar of bills or you can listen to live debates.

Missouri State Home Page

From this page, you can find anything relevant to Missouri including: Looking up legislators or legislation; Amber Alert warnings; Lottery numbers and Homeland Security.

The Library of Congress Federal Legislative Information

Keeps citizens informed of current and past federal legislation.
This site also provides information on the Supreme Court and the legislative process

U.S. Census Bureau

Provides data about the nation’s people and economy.

Project Vote-Smart

Provides background information on all state and national elected officials. This website includes biographical, issue positions, voting records, campaign finances and interest group ratings.

Legal Services of Missouri

Providing legal services to low income and elderly people in Missouri.

NASDDDS

The National Association of State Directors of Developmental Disabilities Services (NASDDDS) is a nonprofit organization, established in 1964, to improve and expand public services to people with mental retardation and other developmental disabilities.

Missouri Planning Council for Developmental Disabilities

The Missouri Planning Council for Developmental Disabilities (MPCDD) is a federally funded, 23-member, consumer-driven council appointed by the Governor. Its mandate is to plan, advocate for, and give advice concerning programs and services for persons with developmental disabilities that will increase their opportunities for independence, productivity, and integration into communities.

Grants and Funding Sites

Missouri Catalog of State Assistance Programs A Listing of Grants, Loans, and Assistance Programs The 2007 catalog was created in partnership with: Missouri Association of Counties Missouri State Agencies
The catalog provides all Missourians, non-profit agencies, state and local governments and private companies with detailed information about state assistance programs and how to apply for the programs. The catalog is available here

Challenge Grants for Technology in Education
The Office of Educational Research and Improvement (OERI) makes these grants to consortia comprised of one or more school districts in high poverty areas, businesses, libraries and other appropriate agencies or organizations for the purpose of improving and expanding new applications of technology.

Federal Register Online

Published by the Office of the Federal Register, National Archives and Records Administration (NARA), the Federal Register is the official daily publication for rules, proposed rules, and notices of Federal agencies and organizations, as well as executive orders and other presidential documents.

The Foundation Center

Goal is to strengthen the nonprofit sector by advancing knowledge about US philanthropy. This website will assist with finding grants in your area.

National Institute of Health Grants and Contracts

Run by: US Department of Health and Human Services, Office of Extramural Research. Provides grants for research, construction, training, career development, and conferences.

Technology in Education

Technology in Education is responsible for coordinating the development and implementation of the Department’s educational technology policies, research projects and national technology summits.

Robert Wood Johnson Foundation

These grants focus on the pressing health and health care issues facing our country. The Foundation works with a diverse group of organizations and individuals to identify solution and achieve comprehensive, meaningful and timely change.

Disability Specific Sites


AUTISM research study
Read More


MO-FEAT – Missouri Families For Effective Autism Treatment

An organization of parents and professionals throughout Missouri with headquarters in St. Louis. Our mission is to provide advocacy, education, and support for families and the autism community and to support early diagnosis and effective autism treatment.

>> More Information
Blue Ribbon Panel Report on Autism.

Attention Deficit Disability Plus

This is a website dedicated to providing great answers to tough questions about Attention Deficit Hyperactivity Disorder and related conditions. They offer helpful resources and seminars that will benefit professionals and parents alike.

Attention Deficit Disability WareHouse

This leading resource helps with the understanding and treatment of all developmental disorders, including ADHD and related problems. This website has resources for purchase.
ADD/ADHD Information

Autism Screening Tool
3 page questionnaire for use on screening Autism.

Autism Society of Wisconsin

Their mission is to promote lifelong opportunities for persons within the autism spectrum and their families to be fully included, participating members of their communities through information and referral, advocacy, public awareness, and education and support for Wisconsin’s Autism Society of America chapter, professionals and others who support individuals with autism in Wisconsin.

Children and Adults with Attention-Deficit Hyperactivity

(CHAD) is the nation’s leading non-profit organization serving individuals with AD/HD and their families. It has over 16,000 members in 200 local chapters throughout the US.

Autism Research Institute (ARI)

Their goal is a collaborative effort to capitalize on each organizations’ strength, coordinate programs and services and to promote unity within the autism community. This website links to other national Autism websites.


Autism Resources in Missouri

Benefits of Exercise for Children with ADHD


Child-Neurology Home Page

The main purpose of this website is to coordinate the available internet resources in Child Neurology, both for professions and patients.

Fragile X Syndrome

The Fragile X Research Foundation (FRAXA), whose mission is to accelerate progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research

Hydrocephalus Association

Their mission is to provide support, education and advocacy for individuals, families and professionals.

Moebius Syndrome Foundation

The Moebius Syndrome Foundation website. Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces.

National Organization for Rare Disorders

Site which provides information on a variety of rare disorders, including a rare disease database.

Prader-Willi Syndrome

Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome

Sensory Resources

Resources for raising children with sensory motor, developmental, and social emotional changes.

Sotos Syndrome

Basic information on Sotos Syndrome. A genetic condition causing physical overgrowth during the first years of life, which is often accompanied by delayed motor, cognitive and social development.

Tourette Syndrome

Official website of the national Tourette Syndrome Association (TSA), offering resources and referrals to help people cope with the problems associated with TS.

Disability Resources
Emergency Preparedness Resources for People with Disabilities
>>More Information


Missouri Home of Your Own Housing Resources
>> More Information


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>> More Information
Missouri College of Direct Support
The Missouri College of Direct Support (MoCDS) is a partnership of agencies that have joined together to create a training and certification program for direct support workers in Missouri.

>> More Information

National Core Indicators

AAIDD
(Formerly AAMR)
AAIDD is the professional association run by and for professionals who support people with intellectual and developmental disabilities.

AccreditedOnlineColleges.org
A powerful and informative site that provides resources such as Disability Education in support of independent living as well as providing a database of for those who are looking for an accredited online degree program that meets Section 504 of the Rehabilitation Act (section 504).

Allen, Shea, & Associates

Provides professional services in the area of planning, research, training, materials development, and evaluation within the field of human services with an emphasis on disabilities.

Association on Aging with Developmental Disabilities

Develops, links, and supports opportunities and services for older adults with developmental disabilities

The Boulevard

A Disability Resource Directory of Products and Services for the Physically Challenged, Elderly, Caregivers and Healthcare Professionals

CARF

CARF reviews and grants accreditation services nationally and internationally on request of a facility or program. Our standards are rigorous, so those services that meet them are among the best available.

Canine Companions

Canine Companions for Independence® is a national nonprofit organization that enhances the lives of children and adults with disabilities by providing highly-trained assistance dogs and ongoing support to ensure quality partnerships.

Children’s Defense Fund

The Children’s Defense Fund’s Leave No Child Behind® mission is to ensure every child a Healthy Start, a Head Start, a Fair Start, a Safe Start, and a Moral Start in life and successful passage to adulthood with the help of caring families and communities.

The Council for Exceptional Children

International professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

disABILITY Information and Resources

Links to disability resources on the internet.

Family Village
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

Mainstream — Magazine of the Abled-Disabled

News & Advocacy in Disability Rights

Missouri Consumer Direct

Center is a Fiscal Employer Agent for individuals who choose self-directed supports. SDS is founded on the principles of self-determination.

Missouri Developmental Disability Resource Center

Center that provides three levels of support. Whether you want to become more informed, get connected, or find ways to volunteer, MODDRC offers a network of support options to get you started and support you throughout your journey.

Music Therapy for ADHD

Website that looks specifically at how music can be used to help those who have attention deficit hyperactivity disorder.

National Association for the Education of Young Children

The National Association for the Education of Young Children (NAEYC) is dedicated to improving the well-being of all young children, with particular focus on the quality of educational and developmental services for all children from birth through age 8.

National Center for the Dissemination of Disability Research

The NCDDR scope of work responds directly to NIDRR’s concern for increasing the effective use of NIDRR(National Institute on Disability and Rehabilitation Research)-sponsored research results in shaping new technologies, improving service delivery, and expanding decision-making options for people with disabilities and their families.

National Dissemination Center for Children with Disabilities

Serves the nation as a central source of information on:

 

  • disabilities in infants, toddlers, children, and youth,
  • IDEA, which is the law authorizing special education,
  • No Child Left Behind (as it relates to children with disabilities), and
  • research-based information on effective educational practices

Office of Special Education Programs (OSEP)

Dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts.

Our Kids

Our-Kids is a “Family” of parents, caregivers and others who are working with children with physical and/or mental disabilities and delays.

Parent Advocacy Coalition for Educational Rights

The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.

Picture Recipes

A collection of picture recipes.

Learning Disability Resources

LD Resources is a collection of entries on various aspects of learning disabilities with comments from community members.

Quality Mall

A place where you can find lots of free information about person-centered supports for people with developmental disabilities.

Riggs Institute

The Riggs Institute is a self-supporting, non-profit literacy agency and publisher. We offer language arts curriculum for teachers and parents and formal training seminars as well.

The Council on Quality and Leadership (CQL)

The Council’s goal is to be partners and mentors to their customers, showing them how they can become even better at ensuring that people with intellectual disabilities and people with mental illness lead lives of dignity and quality.

Waisman Center

The Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases throughout the lifespan. The center is one of nine national facilities that includes a Mental Retardation Developmental Disabilities Research Center and a University Center for Excellence in Developmental Disabilities

WebAble

Dedicated to helping government agencies, technology vendors, e-commerce corporations, and educational institutions make their technology equally accessible to all people, including those with disabilities.

Vendors and Commercial Sites

Southern Bus & Mobility

“Southern Bus & Mobility stocks the most popular wheelchair accessible vans from BraunAbility, Amerivan, and Viewpoint Mobility.”

Access Unlimited

Company which creates products that “allow easy access to ANY vehicle, from cars and vans to trucks and SUVs”

Braun

A provider in the mobility industry since 1963. Manufacturer of wheelchair and scooters. Their stated mission is “Providing Access to the World”

Bruno Independent Living Aids, Inc.

Bruno Independent Living Aids, Inc., is a global manufacturer of accessibility products designed to enhance the lives of those challenged by limited mobility.

Different Roads to Learning

Striving to meet the needs of families and professionals working with children diagnosed with autism spectrum disorders. Their product line contains over 250 products, including books, flashcards, and videos, along with other materials critical to Applied Behavior Analysis and Verbal Behavior programs.

Don Johnston, Inc.

Empowers educators with supplemental instruction and intervention solutions to help struggling learners build core literacy skills with confidence.

Duxbury Systems

Supplies software for Braille.

Kempf- Katalavox

Design and manufacture a voice-control system called Katalavox. It is a speech-recognition system used in the following applications:
  • control of surgical microscopes in operating rooms
  • control of power wheelchairs and other devices for quadriplegics
  • control of electrical functions in automobiles for disabled drivers

Metlife – James T. Gentry, CFP

MetDESK® Specialist (MetLife’s Division of Estate Planning For Special Kids)

Prentke-Romich Co.

Company which specializes in the development and manufacture of augmentative communication devices, computer access products, and other assistive technology for people with severe disabilities.

R.J. Cooper

Software and Hardware for Persons with Special Needs

Silver Cross

Sells mobility equipment to seniors and people with disabilities

Stairlifts Reviews

Features practical tips on how to choose the best stairlift.

SourceOne Medical

For people with mobility challenges, an electric wheelchair or scooter means freedom. You can go anywhere you want.

Telesensory

Helping people with visual impairments achieve greater independence through innovative, technology-based products

Trade Schools
Information about trade schools, get the skills you need and obtain a degree studying in a vocational school.

Independent Living Aids, Inc.

Selection of specially adapted low vision aids

There is a recent government assistance program that not many people are aware of: the Lifeline benefit program. Lifeline can help provide crucial connectivity to families that would otherwise not be able to afford a mobile phone or land line. A great explanation of the program can be found here: http://www.verizonwireless.com/b2c/landingpages/lifeline.jsp


Around the World

Youreable

Information, Products and Services for people with disabilities.

Centre for Disability Studies

CDS is an interdisciplinary centre for teaching and research in the field of disability studies at the University of Leeds (England).

Advocacy

The Harvard Law School Project on Disability

(HPOD) works to promote the human rights of people with disabilities worldwide.

Missouri Protection and Advocacy

MO P&A is a federally mandated system in the state of Missouri which provides protection of the rights of persons with disabilities through legally-based advocacy.

Missouri Parents ACT

MPACT is a statewide parent training and information center serving all disabilities. Their mission is to ensure that all children with special needs receive an education that allows them to achieve their personal goals.

Fanlight Productions

A leading distributor of innovative film and video works on the social issues of our time, with a special focus on healthcare, mental health, professional ethics, aging and gerontology, disabilities, the workplace, and gender and family issues.

Tyler

Tyler is a typical high school student who happens to have cerebral palsy and some other challenges. He has taken on a mission to educate the world about Ability Awareness.
Fashion

Financial Assistance for Individuals/Families

The Medicine Program
http://www.themedicineprogram.com/
Free medicine programs

Partnership for Prescription Assistance
https://www.pparx.org/Intro.php
The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them
UnitedHealthcare Children’s Foundation
The UnitedHealthcare Children’s Foundation provides financial assistance toward the family’s share of the cost of medical services..

Missouri Department of Social Services

Food stamp application form, instructions and manual

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